Well we had our check up and it was a complete waste of time. They basically told me to hang in there cause this could be as good as it gets. He has another skin infection so it's back on antibiotics and wet wraps 4 times a day. We had only just got them down to overnight and now it's back up again to make things worse I have a head cold and all I want to do is lay on bed and sleep.
I just wish I could make it go away for him so he could feel better about himself and not think I'm trying to hurt him all the time. I hate being the mean mummy I wanna be the nice mummy. I know he doesn't mean what he says but it's hard to ignore sometimes

Ivan had his blood tests today, we went to a different path lab as I didn't have time to drive an hr to the childerns hospital to get it done now I wish I had cause even though I told them not to tell him why he was there until they were ready and I had hold of him they did the opposite so he backed himself up into a corner and starting screaming and what happens when he starts screaming u guessed it he starting scratching cause he was so upset after about 20mins they finally were ready and I held him down to do it. I don't get why they just didn't listen I told them he gets them every month so I should know how he is going to react. Some medical professional annoy me sometimes. Well we find out the results on Monday so fingers crossed everything is ok

Well we have now started the beginning of the worst time of yr for Ivan. But thinking about it summer is the only time of year that Ivan gets some relief. So now the next 7+ mths ate going to be filled with infections less sleep (not that we get any noe) and antibiotics. Where is the life remote to fast forward till summer again

Over this feeling of guilt I feel all the time because no matter what I do Ivan's skin still flares up. I feel like there is something else I should be doing. After all I'm his mother and should be protecting him from everything :( god I hate eczema no one should ever have to go through this. Just over it.

Well just when we thought we had figured out all Ivan's allergies we have worked out he can't eat raw salt as his face rashes up straight away and he says his mouth is bubbling :( now I have to say no to chips hot and cold and most other snack food he loves which really sucks, I hate having to say no when his diet is so restricted already. On a positive note his skin is fairly clear apart from a couple of bad patches :)

Well we are still not getting much sleep but im getting used to it now lol. The immune suppressant therapy is slowly working but I think he is starting to get a skin infection which I hope he doesn't get because on the immune suppressants he doesn't have a good immune system to fight the infection so it will mean long term antis or even admission for iv treatment.
Married life is good can't wait to see the professional photos.
Oh and still waiting to hear from the respite people about if we got it or not

Catch up

Sorry again that it has been awhile. Well Ivan is still on the immune suppresents and is slowly improving, they thought his skin would be totally clear by now and that they would be able to take him off them by now but unfortunately he needs a higher dose but to do that he needs to be admitted for 12 weeks which I'm not mentally ready for yet so while he is still improving they are happy to keep him at the dose he is on. Our wedding day was awesome and all the kids were fantastic. There wouldn't be anything I would change about the day it was just perfect. I'll try and get on here more often now that I don't have a wedding to organize lol

Some of our wedding photos

Wedding stuff

Our rings and the girls dresses

On another note things for the wedding are slowly getting sorted and now I'm starting to get excited but also stressed at the same time :)

Sleep again

It is currently 1.24am and I still haven't gone to sleep as Ivan won't stop scratching and it's still about 24 degrees here. Sometimes I just hate summer and the sleepless nights :(

Flowers

Woohoo I have now organized my wedding flowers.

These are the cake, my dress, the girls dresses but they will have a different colour and the boys cuff links :)

Hi all there has been so much going on lately that I have forgotten to post. Ivan has started his immune suppressant therapy and atm we are sort of seeing results. He did have clear skin but it seems his body is getting used to the meds and he is starting to flare up again.
I'm also trying to finish planning my wedding which is in 9 weeks. I'll post some photos of some of the plans so far