ivan was diagnosed with eczema at 3mths old i think he had it from birth but they just kept telling me it was dry skin and nothing to worry about. At first we were just seeing the gp but it was just getting worse so we were referred to a pead who did a allergy test and ivan was allergic to egg, wheat, dairy, soy, citrus dust mites and most household chemicals. This was tough at first as we had to change everything we did eg how we cooked how we cleaned etc.
we saw this doctor for about 1yr and ivans skin kept getting worse no matter what we tried and what strength cortisone we used and the doctor kept telling me that i was causing it to get worse and that it really wasn't as bad as i thought so i took him to emerg as i was really concerned about him and at 13mths old he had his first admission for a staph infection that the pead said wasn't that bad.
it was after this admission that i decided to take him to the children's hospital to get more specialized care. our first apportionment turned out to be an admission for 3 days and this has become routine over the years so now i actually dread going to follow up appts cause i hate seeing ivan in pain and admitted.
last year he had a allergy test redone and he had grown out of the dairy and soy allergies but his pollen allergies are now so bad he has to be in wet wraps for 9mths of the year and if the pollen count is over mild he is not allowed outside as he will flare up in 5mins so this has become very isolating for me as i can't always go out when i want to and the weather decides for me when we go out. the amount of infections ivan has had i have lost count of as it seems as soon as he comes off the antis he gets another one. i can tell u i'm truly over it. it feels like u are trying to fight something blind folded sometimes. i must say the doctors at the children's have been great though and even admitted when they didn't know what else to do for him so they contacted njh in America just to try and get some help and now they stay in regular contact with them. i think thats it just a quick update if i forgot something i'll add it later. or if u have any questions feel free to ask :)
I understand, we're in the same boat. It's so hard for these kids and it really takes a toll on the family as well. At least we have each other - other parents for support.
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